A Friend Has Been Diagnosed with Multiple Sclerosis

Discussion in 'Surfing' started by DownSouthSlidah, Oct 28, 2016.

  1. DownSouthSlidah

    DownSouthSlidah Member

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    Oct 30, 2007
    Hi All,
    A good friend has been diagnosed with MS. At 27 years old and an avid athlete, she is, naturally, devastated. She is able to get up for about 30 minutes at a time and mostly has to sit or lie down the remainder of her day. As she says, "my body may be weak right now, but my mind is strong..." so she is asking for work (she designed our website and does a lot of our marketing and materials work for us) - which, believe me, I can keep her busy with. But I want to do more and I thought, perhaps, the following would be a small part of that:
    I remember an article which, I believe, was in an issue of Longboard Magazine about Wingnut and his battle with MS. I remember it being very inspiring (to me at the time) about his affliction, his battle with it and his family and community support through to the attitude he had at the time when it was active and then his acceptance and, finally, gratitude over being able to live in the present moment while his MS was in remission. Just being grateful to be able to surf never knowing if it would come back or how long his health would hold out.
    I cannot find the article in a google search and my Longboard mag collection has long since passed on to another world. Maybe it was in a different magazine like Surfer's Journal or Pacific Longboarder??
    Anyway, if anyone here has a better memory than I and can source the article for me - for her - I would truly appreciate it. I think she could relate to his story and, perhaps find hope, or solace, or help her along with her acceptance - I don't really know what it might do, if anything, but it seems like one way I can be of assistance.
    Thank you in advance.
    James
     
  2. matsurfer

    matsurfer Active Member

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    Nov 13, 2010
    I have some old Longboard magazines. I will check them.
     
  3. davey

    davey Member

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    Jun 9, 2007
    Australia
  4. bc

    bc New Member

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    Feb 16, 2004
    USA
    Aside from Wingnut's success in dealing with MS,
    you or she might want to try searching:

    multiple sclerosis mercola

    for lots of articles on the subject.
    Seems it is usually related to diet, food allergies, and also vitamin D deficiency.

    Often some useful information in the comments too.
     
  5. mont the drifter

    mont the drifter New Member

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    Aug 11, 2016
    SF Bay Area
    Here's a pretty good one from Outside Magazine
    http://www.outsideonline.com/1922561/learning-surf-without-feeling
     
  6. SeniorGrom

    SeniorGrom Well-Known Member

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    USA New Jersey
    My wife was diagnosed with MS in 1994 at the age of 48. She had suffered a seizure which is unusual. She had few other symptoms other than numbness and tingling in the extremities. MRI and spinal fluid confirmed. Neurologist sent her to a Dr who treated only MS patients. Reviewing film and records he concluded she may have what he called benign MS. She's been on a weekly interferon injection since with little to no symptoms. We are blessed. We did stop snow skiing because she can't tolerate the cold. Other than that a pretty normal life. Our best to your friend.
     
  7. frankadelic

    frankadelic New Member

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    Apr 1, 2004
    I see Wingnut all the time and he is still surfing great. Have your friend check out the Wahls Protocol, a diet-based program for MS developed by a MD that reversed her own chronic progressive MS. In clinical trials now at Univ of Iowa if memory serves. Best of luck to yr friend.
     
  8. DownSouthSlidah

    DownSouthSlidah Member

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    Oct 30, 2007
    Thank you all so much for your thoughts and advice.

    The Surfer article isn't the one but is interesting. I had red the Outdoor inequite a while ago. Great article. Makes you want to go surf with the guy.

    Matsurfer - if you do find it, that would be glorious but please don't spend too much time at it.

    Definitely going to check out the Wahls protocol and Mercola.

    Seniorgrom - thank you for sharing you and your wife's story. It is good to hear that there is hope.
     
  9. mgarbutt

    mgarbutt Active Member

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    One of my best friends was falsely diagnosed with MS, which in turn ended up being Lupus which has similar symptoms. He is a well accomplished surfer & once he was diagnosed it really hit him hard. He didn't want to surf as much, there were many days when his body didn't allow him too, & getting in the right state of mind was very difficult for him. It was hard for me to watch & see him going through this. The best thing to do is exactly what you are doing, being as supportive & positive as you can. It's easy for people to get depressed when receiving such a devastating diagnosis & it takes awhile for them to accept it. Once they have accepted it then they can move forward with figuring out how to make the most of life with the disease. After 2 years & a lot of doctors and specialist visits he is back in the water stoked as ever! His passion for surfing is in the most simplest form, just being out in the water surrounded by his friends. Makes me appreciate every session I have with him & am thankful that he was able to come back from it all. You are a good friend for caring & looking for ways of hope for her.
     
  10. applekat

    applekat Well-Known Member

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    I very much like this thread, James.

    Well done.
     

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